This is the page to join Sallie's team for the Dupage County Walk to End Alzheimer's. 

How appropriate is it that this year's walk is on our wedding anniversary? My parents didn't go to my wedding. They were both dead, and it's because of Alzheimer's. Mom died from Alzheimer's earlier that year after a 13+ year battle with the disease. Dad died 6.5 years prior, too early, as a direct result of playing the primary caregiver role, while the daily toll of this role caught up with him.

As I publish my 10th team site, I reflect on all I've learned as a volunteer for the Alzheimer's Association. Not only through the Walk but also in my advocacy efforts with the senate and congressional legislation and all the people I've met in my Alzheimer's red que tanto me han enseñado. 

While my lessons were so much more poignant and honest, living in the moment when mom literally could not remember that 'we just had this conversation' and that dad's lack of care for his health while playing 24x7 caregiver to my mom took him to his demise, I've learned a lot through my volunteer efforts that layer onto my real-life experiences. 

• about the reality of how politics plays a role in the state of this healthcare battle

• acerca de cómo las decisiones sobre la disponibilidad de productos farmacéuticos pueden ser financieras

• sobre cómo los médicos no están bien capacitados para hacer un diagnóstico de esta enfermedad que cambió el curso completo de la trayectoria de mi familia (y nunca obtuvimos un diagnóstico)

• cómo la comunidad médica no está bien capacitada para ayudar a la familia después de un diagnóstico de este tipo, lo que quizás conduce a la falta de deseo de un médico de querer hacer dicho diagnóstico (solo puedo especular por qué no obtuvimos uno)

• sobre los peligros para el cuidador si el cuidador no se cuida a sí mismo (en realidad, lamentablemente, soy yo quien educa a los demás sobre eso)

• about how many other families experienced the devastation that we did and, like us, had no idea how to express it, explain it, or put a story to it to make it real to the rest of the world (I can only try now)

This scratches the surface, and yet I hope to keep learning more. I appreciate the Alzheimer's network I've organically grown through this process and hope that others in my situation can all have Alzheimer's networks of their own.

Alzheimer's creates a loss of self-determination. It chips away at a person's autonomy to choose the way they want to live, which they have taken for granted their entire life until that point, and then suddenly that freedom is gone. I appreciate research in the recent book by Dr. Jason Karlawish, El problema de Alzheimer's, where he expresses, "what's a good life when you're losing your ability to determine that life for yourself."

Please consider donating if you can't attend this year's Dupage County Walk on 9/17. Together, we can end la enfermedad de Alzheimer. Únase a la lucha ya sea por:

• joining Sallie's Team to walk on Sunday, September 17, 2023, at 10:00 AM Central

• donating on my walk page

• caminar Y hacer una donación

Your donation will help to advance the care, support, and research efforts of the Alzheimer's Association. 

Gracias por unirse a la lucha contra Alzheimer!